Fallon had a traumatic brain injury while playing soccer on the day of her 13th birthday. She was athletic and also a competitive diver and into acrobatics (tumbling and trampoline), but the injury forced her to slow down. It caused her to have a year of short-term memory only, she lost the dexterity in her right hand so she wasn’t able to write, and she had to be hospital-homebound schooled due to the constant pain and fainting. Just two months prior, her family had moved from Kentucky to Gainesville, FL.
“It was really a challenging time to have such a dramatic change,” Fallon said. “I had just moved, and sports were my whole life. It was this complete 180, a complete turnaround of my entire life.”
Many of her symptoms dissipated after a year, but the migraines and fainting wouldn’t cease.
“The injury caused so much scar tissue to build up on my neck. Due to that injury combined with past injuries, I have chronic pain. So I basically have a migraine all the time. I’ve had a migraine for six straight years, and I’ll have one for the rest of my life,” Fallon said. “You get used to it. When I wake up, it’s completely normal for me to be in pain.”
Fallon looked for a mentor to help her navigate her new life. She knew she’d never play sports again and had to be homeschooled until her symptoms could be managed better. She hoped to find someone to look up to who was young and female, who had chronic pain and was thriving and succeeding with it. She came up short.
“I decided if I can’t find the person I needed, I should become the person I needed,” said Fallon, who stared a charitable organization,
chronicpain09, in 2015 and a year later launched an online support group from it.
“This isn’t the path I expected for myself. I thought I’d be an athlete, and I wasn’t super passionate about writing. Then in a day, everything changed,” she said. “What I don’t like is when people say I suffer from chronic pain. No, I live with chronic pain. I’m not suffering — I’m living. I’m happy. It hurts, and it’s awful sometimes, but you live with it and you learn to accept it. That’s the message I want to get to young minds, because there were so many people who told me chronic pain was impossible to live with; it’s impossible to be happy. What I want all the young minds out there to know is that if they want something, and they are passionate about it and work hard, they can change the world and make an impact.”
Fallon’s support group numbers 240 members who share tips and insights about a number of chronic illnesses, finding comfort in the shared experience. She’s encouraged by the feedback she’s received from members and in the conversations she sees posted.
“What’s really amazing is when I see someone post about a condition I don’t know much about — like EDS — I see people in the comments helping each other. That just makes me so happy, because I was able to connect those two people,” Fallon said. “People have messaged me and said this support group has given me hope and that absolutely touches my heart.”
In January, Fallon launched
Operation Care, a project within chronicpain09 that raises money to buy toys, books, games and such for children of all ages who are hospitalized. She recently made her first drop off of items to St. Joseph’s Children’s Hospital in Tampa, which posted their appreciation with a photo of Fallon on its Facebook page.